“I’m doing a talk with a big group of physicians and I want to talk a bit about internalized misogyny, implicit bias and systemic racism. Do you have any suggestions for resources so I can incorporate into planning my talk?”
This was a request from a client last week, but I get this kind of question frequently. So I thought I’d capture a few useful resources on systemic inequity/ racism in health I’ve come across recently — while being clear that this is one tiny bit of a large and growing body of resources. (And locating myself as Not an Expert — just one White queer able-bodied settler on my own journey through reckoning with internalized racism, privilege and systemic bias).
One of the most current, concise and eye-opening recent papers is called Experiences of everyday racism in Toronto’s healthcare system: a concept mapping study (O’Campo, Lofters, Shankardass, Salmon and Muntaner, published in 2021). This study maps out some of the different ways that racialized health care users experience “everyday” racism — the subtle and not so subtle ways — and describes five types of experiences: racial/ethnic and class discrimination; dehumanizing the patient; negligent communication; professional misconduct and unequal access to health and health services. This is a must read for anyone trying to understand systemic inequity from a person-centred perspective.
Another important way to understand systemic racism is by looking at the health impact of implicit bias in our culture. There are a ton of exhaustive resources that demonstrate gaps in care and understanding because of gender and racial bias in research (i.e assuming that white men are “the norm” and extrapolating from there), biased models and assessment tools, the lack of race-based health data (see: Transforming race-based health research in Canada), colonization and systemic anti-Indigeneity, the health impact of the lifelong stress of navigating the world as a racialized person, and the multi-layered health inequities created through biased access to care or discriminatory treatment in the health system (among many, see: the summary of the 2020 Black Experiences in Healthcare Symposium, a 2015 systemic review and the recent Nature piece about reducing racial bias in clinical settings) .
Another lens to understand systemic inequity in healthcare is by looking at the clever ways that resistance to equity efforts shows up. Two papers I’ve found useful in coaching healthcare and academic healthcare leaders are: 1) “Gender-based disparities in medicine: a theoretical framework for understanding opposition to equity and equality” (Ruzycki et al, 2021), which uses a health behavioural impact framework to understand opposition to equity (in simple terms, if people don’t see a benefit for themselves, they don’t see the value); and 2) “I wanted more women in, but…’: Oblique Resistance to Gender Equality Initiatives” (Jones et all, 2021). The context for the last one is the British Labour Party, not healthcare, but the notion of oblique resistance (claiming agreement with the purpose but finding ways to reinforce dominant culture) is useful in many contexts.
If you have something useful to add to the list, pop it into the comments.